Page 1 of Government to sell off your private NHS data - how to opt out before 23 June
This is not trivial to do, but if you don't want this government to sell you and your kids' NHS data to private companies (no matter what they tell you, your data can be definitely linked to you personally with little effort even if anonymised) then you have to jump through two hoops, one for your GP and one for your non-GP stored data.
What are the concerns about sharing private medical information?
A basic principle of respecting people’s right to privacy is that their consent should be obtained if any of it is to be ‘shared’. And a data privacy impact assessment should be done – in this case, we’re not aware of any. Any processing of our data that breaches duties of confidentiality (as in the case of what you share with your doctor) cannot be considered ethical, fair, or lawful.
The government appears to be bouncing pressurised GPs into just sending off all our data. Using media diversion techniques and the pandemic as cover for NHS Digital ordering GPs to submit the records of every patient in their care to the new, permanent database.
Many GPs didn’t know about this. Neither the British Medical Association nor the Royal College of GPs has approved this.
The NHS Digital website provides re-assuring phrases about confidentiality and ‘pseudonymisation’ and ‘the NHS’ not selling our data. But it adds that it can unlock the pseudonymisation codes “in certain circumstances, and where there is a valid legal reason”. So our identities can be revealed and ‘medical’ information sold off to private providers.
This is a good guide on what to do:
Once your data has left the NHS, you have no control over how it is used. You have no control over how secure it is, it's even less safe guarded at that point.
I strongly advise everyone opts out. I will be.
My Flickr Photostream
Already filling out my no thanks forms for delivery to the docs.
Very good article on it with links to download forms if you either look on Marina Hyde's twitter or search for her Guardian article.
There's been enough grief caused that they are very likely to push the date forward to September as a start, until they do though you've got till June 23rd.
My new Flash Fiction blog. All my own work
I am not young enough to know everything.
My Flickr Photostream